Lipidema: I’m a Lippy Lady

 

 

While my family and friends know me for my loud laugh and my tendency to blurt things out at inappropriate moments (one of my worst flaws), a Lippy Lady has nothing to do with my mouth. A Lippy Lady is a nickname for those of us who suffer from lipidema or in my case lipo-lymphedema.

I don’t talk alot about my health situation, but I figured it’s about time I said something – if only to bring hope to some other female out there who has struggled for years with her weight and can’t figure out why she never loses.

I have a combination of two diseases. The primary disease is lipidema and the secondary disease is lymphedema. Lipidema (also known as painful fat syndrome) occurs exclusively in women and yes it is very painful. It is the abnormal build-up of fat cells in the legs, thighs and buttocks. It usually begins at the onset of puberty and while I’m told it is hereditary, my mother never had it. Currently, over 17 million women have this disease and don’t know it! Why? Because their doctors only see fat, not an underlying disease. Plus, I’m told that a total of 15 minutes of training, during a four year medical course, is all that is given to doctors on the lymphatic system. Which is why most doctors do not recognize it.

I spend about one hour a day in a lympha-press. A machine that squeezes my legs in the hopes of moving the lymphatic fluid in my body. The picture above shows what it looks like. It feels like a blood pressure cup on my leg and can at times be very painful.

In the early stages of lipidema a woman will be small on top and wide on the bottom. In other words a pear-shaped body. During each hormonal change (onset of periods, pregnancy, menopause) the woman will notice her behind and her legs getting bigger. When I was sixteen I noticed my legs (at the top) were getting huge. I couldn’t figure it out because I was very active – rode my bike everywhere, swam a lot, walked everywhere and was very conscientious about what I put in my mouth. Things got so bad when I was a teenager that I barely ate anything, yet I found it impossible to lose weight anywhere below my waist.  I can remember going to the gym with my mother at an early age to work out, with little to no success, and I continued to do that right up until the time I could no longer move my legs without severe pain. In all my years of working out and dieting I became incredibly discouraged and depressed because nothing worked. And with each pregnancy things got worse.

While trying yet another diet (Jenny Craig) and exercise program (Curves) I began to notice a rock hard substance in my legs and it felt like they were getting bigger. About this time my legs started to split open and water would leak out (that’s how big and tight they were getting). Unbelievably, when I went to my doctor he refused to listen to my concerns. I have since learned that most male doctors are preconditioned with an incredible prejudice against overweight women. So much so that they will tell you over and over again to go on a diet (even though you’re on one) and exercise (even though you do). Mine would insinuate that I was cheating on Jenny Craig, when in reality there was so much food on Jenny Craig that I couldn’t eat it all. My counsellor with JC began to notice that I was losing inches everywhere but below my waist (she measured me each week). She also measured my legs and told me they were getting bigger too. She was also concerned that after almost a year on the diet I had only lost 16 pounds when it should have been closer to 50. I went back to my doctor who again refused to listen to me.

In my case, I started to get several serious skin infections called cellulitis over the course of a year or two. After seven or more visits to the ER where I was given I.V. antibiotics and received home-care for a week at a time, one doctor in frustration said to me, “Why aren’t you getting your lymphedema treated?” At that point in time I had never even heard the word “lymphedema” before. So I asked him what he was talking about. He was shocked that my doctor had missed something so obvious and sent a letter to him with a recommendation to have me treated with manual lymph massage. But did my doctor listen? Of course not. He could only see the fat. So I dumped him and went to a walk-in clinic, where I managed to get a new doctor who realized right away there was something wrong with me. FYI – my new doctor is a woman. (Yes, I think it makes a difference).

She sent me to a lymphedema physical therapist who took one look at me and said, “I have some good news and some bad news. The good news is that all those years of trying to lose weight with diet and exercise and never being able to lose anything at all is not your fault. You have lipo-lymphedema and it is the reason you can’t lose weight.”

I wanted to cry. All those diets! All those gym memberships that never worked! All that money invested! I felt like a weight (pardon the pun) had been lifted off my shoulders. I always blamed myself but knew in my heart I couldn’t have done anything differently. Still I continued to blame myself. But, now I finally had some answers. So I eagerly awaited her cure for me to lose the weight. That’s when she hit me with the bad news.

“You have stage 3 lipo-lymphedema. There is no cure and dieting and exercising will never help you to get rid of it. Your legs will unfortunately continue to grow, but we can with manual lymph massage and compression stockings keep the growth at bay for a while.”

Unfortunately, after examining me further she realized the tissue was so hard and congested that I would need surgery to remove it before any treatment could begin. The goal was to reduce the swelling in my legs so that I could get into compression stockings which would keep the disease (supposedly) at bay. She sent me to a specialist who agreed with her diagnosis and to make a long story short I had the surgery, it didn’t work and the lymphedema (my secondary disease) kicked in with a vengeance. Five months after my surgery the congested tissue would also return and get so big that I could no longer walk without severe pain.

We have hundreds of lymphnodes throughout our bodies and in a normal person the lymphatic system takes all the bacteria, dead blood cells, fat, etc. and filters it through the lymphnodes to the liver, kidney, etc. and all that bad stuff eventually comes out in your urine. In someone with this disease, the lymphatic system gets all backed up with fat and it doesn’t filter through and everything gets clogged up and stays in one place and builds and builds and builds until the patient can’t even move. Most people with this disease are in wheelchairs.

All that to say this – if you are struggling with your weight and you cannot lose and you’ve tried everything, don’t let your doctor convince you that you aren’t trying hard enough. Go to someone who will listen.

 

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  97. Función de inicio diferido le permite controlar cuando comienzan y terminan cada ciclo, mientras la pantalla muestra el tiempo restante para la finalización. Mi cuñado me dijo que a él se le había averiado el portatil y que lo llevó a El Corte Inglés, al servicio de Asistencia Técnica, porque todavía estaba en garantía. Ahora vivo en UK y el aparato se ha averiado (según servicio técnico en Edimburgo, fallo de fabricación). No realizamos intervenciones en Electrodomésticos Bluesky en Garantía de Fábrica.

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  101. Cualquier problema que presente su portatil, ya sea que no encienda, este rota esta más lenta de lo normal, en Data System reparacion ordenadores Madrid España con gusto resolveremos su problema. Así también contamos con los servicios de piezas repuestos y accesorios para portatiles, aquí encontrara todo lo referente a su portatil a un precio justo y con gran calidad.

  102. Recuerde que nuestro Servicio Tecnico Bosch en Cerdanyola del Valles ofrece mantenimientos, reparaciones y todo lo relacionado al cuidado de sus electrodomésticos. Los técnicos de servicio llegan a su domicilio con los repuestos originales para la reparación y aumentar la posibilidad de la reparar su aparato en una sola visita. Una marca líder como Bosch siempre ha de contar con una asistencia técnica de primerísima calidad. Para contactar con el servicio oficial al cliente Bosch debes llamar al 245 255 ó al 97 305 713.

  103. Empresa dedicada a la reparación e instalación de gas, calefacciòn y aire acondicionado. Después de perder mucho tiempo navegando por la complicada web de asistencia de Sony VAIO, dí con un un número de teléfono. Inocente de mí, al no haber pasado dos años de la compra, llamé al nº de teléfono para equipos en garantía. Ahí, un ordenador me dijo al introducir el nº de serie que ya no lo está, que es sólo de un año: primera ilegalidad: en España la garantía de los productos electrónicos es de 2 años por ley. Creo que no compro nada SONY , en mi vida y; !Ojo a navegantes¡si compras tecnología desde luego piensa en el servicio de postventa, no en SONY.

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  106. Ahora me supongo que me la cogeran en garantia, pero en ningun momento me piden factura ni nada ( la pille en Mediamarkt, con lo cual la podria recuperar en caso de no encontrarla en casa) se la mandare desspues de semana Santa. Tambien me han dicho que solo pueden meterle La ROm oficial de Timofonica, asi que me toca liberarla de nuevo y soportar el WM5 no se si despues de recibirla la actualizare de nuevo a WM , He leido que al ser de movistar primero habia que pasar el USPL pero como os cuento no me ha echo falta ejecutar dicho programa. Hla, he mandado la mia el martes pasado, hoy he preguntado ke por ella y me han contestado: Pues su pda nos ha llegado y esta pendiente de pasar a reparacion.

  107. El verdadero éxito de nuestro SERVICIO TÉCNICO DE REPARACIÓN DE Frigorificos Liebherr no es que usted nos vuelva a llamar -ya que esperamos que su Frigorificos Liebherr funcione sin problemas durante muchos años si hace un uso adecuado de ella- sino que nos recomiende a sus vecinos si a estos se les presenta una avería. Por este motivo nuestros técnicos son honestos y sinceros cuando llegan a su hogar y reparan con garantías su Frigorificos Liebherr sin reservas.

  108. SOLUCION : En mi caso ha bastado con colocar un trozo de cartón del embalaje de la nevera , de manera que ninguna de las patas toque el suelo. Según el manual el frigo mete ruido hasta 44 dB´s en ponderación A (la ponderación es una caracterización en freciencia de los sonometros donde se atenuan bastante las frecuencias mas bajas) Mas info  -. En cualquier caso a mí lo que más me ha jod… de esta historia es que tanto en la Tienda donde compre el frigo como en el Serv.

  109. Te formarás también en programación CNC y codificación ISO, conocerás la máquina de torno convencional para entender horas más tarde el por qué de las máquinas CNC. FABRICACIÓN EN SERIE por C.N.C. de Tornillería Especial, Repuestos, Piezas Especiales y Conjuntos.

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  112. Gracias a que se desprecian las componentes de tensión en las direcciones transversal y en profundidad (direcciones Y y Z en la figura 7), así como la aportación de los nervios transversales al comportamiento a flexión del componente mecanizado; es posible representar el comportamiento a flexión de un componente nervado de geometría estándar mediante únicamente una sección transversal de dicho componente.

  113. Having read this I thought it was very informative. I appreciate you taking the time and effort to put this article together. I once again find myself spending way to much time both reading and commenting. But so what, it was still worth it!

  114. Dado que Pulsar está en disposición de aplicar sus promesas de calidad a sus clientes a través de la inversión en máquinas de producción de alto valor, cuenta con una cartera de clientes muy satisfechos en el espacio árabe, como Nestlé, Unilever, Procter & Gamble, Nike, Burberry y BMW.

  115. Gracias al continuo esfuerzo inversor disponemos de equipos e instalaciones de la máxima precisión y tecnología lo que, unido a nuestra afán de colaboración, hace que nuestros clientes confíen en nosotros para sus trabajos de alta calidad. Talleres Arania S.L. está certificada acorde a la ISO 9001, asegurando a nuestros clientes una perfecta trazabilidad de piezas y útiles.

  116. Por desgracia poca gente tiene la empatía suficiente para ponerse en el lugar del técnico de clínica micro, y no los culpo, después de dejarse un pastón en los cantos de sirena del comercial, su producto no funciona/esta roto/problema imaginario/rellenar aquí motivo de queja Lo normal es que si el equipo presenta un problema en el plazo 1 año, mientras no sea un daño evidente (rotura de pantalla, plásticos, quemaduras por sobretensión, bichos (si, cucarachillas, alguno llega asi) SOFTWARE!!

  117. A comienzos de los ’90 se introdujo la tecnología de control numérico abierto, que posibilita su personalización y la incorporación de conocimientos propios, programación gráfica interactiva, comunicación digital con los accionamientos y otro nutrido etcétera que nos ofrece las notables ventajas actuales de la maquinaria CNC.

  118. Hoy en día, una máquina de precisión generalmente se controla utilizando un Controlador Numérico Computarizado (CNC). Una máquina de torno CNC está controlada por una computadora. Dado que cualquier componente en particular puede requerir el uso de varias herramientas diferentes, taladros, sierras, etc., las máquinas modernas a menudo combinan múltiples herramientas en una sola celda”.

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  125. Como centro de mecanizado en Granada de referencia desde hace años, queremos aprovechar un espacio como este para hablarte sobre las principales aplicaciones de la fresadora, una de las máquinas más utilizadas en nuestro sector. También se estimarán los servicios prestados dentro de las empresas en período de prueba y por el personal eventual e interino, cuando éste pase a ocupar plaza en la plantilla de la empresa.

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  127. Empresa Importadora requiere incorporar a su equipo de trabajo señoritas con experiencia en facturación, atención telefónica y servicio al cliente, edad entre 20 a 30 años. Persona con experiencia en servicio a la mesa en eventos empresariales y familiares, con buena presencia y no mayor de 40 años. Requerimos profesional con experiencia en comercialización de cacao en grano a nivel regional con sólidos conocimientos de calificación del producto y técnicas de negociación en volúmenes en las zonas productoras de la región. Experiencia: 2 años mínimo en funciones de recepción/secretaría y asistencia administrativa.

  128. Servicio Tecnico Valencia, Reparacion de electrodomesticos en Valencia, hornos, climatizacion, calefaccion, lavadoras, lavavajillas, frigorificos, asistencia tecnica y servicio técnico Ariston, Aeg, Amana, Aspes, Balay, Bosch, Candy, Edesa, Fagor, Fleck, Indesit, Liebherr, General electric, Lynx, Newpol, Otsein, Rommer, Zanussi, Miele, Teka, lg, electrolux, arreglo urgentes y presupuestos valencia.

  129. Ponemos a su servicio nuestra oficina técnica e ingeniería para el diseño de sus productos con el enfoque de optimizar costes, basándonos en nuestro know-how en procesos productivos. Calidad, Precio y Servicio, son las tres cualidades que siempre nos han distinguido, y que nos ha permitido evolucionar y mantener la confianza de nuestros clientes.

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