Startup Story: Patients for Clinical Research

plz

Tell us about your entrepreneurial product or service.
Patients for Clinical Research seeks to create and implement programs to educate patients, patient groups, researchers, and medical providers on clinical research. Our mission is to make clinical research accessible to all who can benefit from or participate in the research process.

Our vision: To use digital technology to educate and enable everyone across the globe on how to access and participate in clinical research anywhere, anytime.

We are a team of patients who, with the support and assistance of a wide array of industry and research experts, have banded together to help pharma research put the human back into research into the conditions and diseases that impact the quality and quantity of human life.

We have no borders. Our only mission is to get all the players at the same table.

What inspired you to launch your business idea?
I developed a Rare Disorder in 2001 at 31 years old. It took me 4+ years and 51 specialist consults to be handed a Medline study & told to find the neurosurgeon that reformed the study. This neurosurgeon correctly diagnosed my Cranial Nerve Disorder & I had 99.99% successful Microvascular Decompression Surgery. Even with dangerous complications, I didn’t care my ears no longer felt like they were being stabbed by ice picks 24/7. At my post surgical appointment everything was great. I had returned to work and was back to my workout schedule and had hope for the future once more. My only complaint was neck pain. I thought I had been working too much. My neurosurgeon took an xray then a MRI to make sure & I drove home 6 hrs. away. The next day he called me while I was driving & asked me to pull over. THis told me I had a severe Chiari Malformation and was about to become a quadriplegic. I had to get back to Pittsburgh for 16 hr. emergency Chiari & C Spine surgeries. That was the point my life forever changed. My Rare Disorder Journey has been & still is more difficult than most will ever be able to comprehend. I live with multiple Rare Disorders daily and severe chronic pain, but I refuse to let it define me and my life. I did though have to turn my personal situation into something positive for humanity & help others not have as difficult a path as I stumbled alone for too long.
nts of the Cente
I was a panelist at Patients at the Center of Clinical Research.” This workshop planted a seed for Patients For Clinical Research.

What problem does your business or organization solve?
Patients for Clinical Research is a solution to many problems in the Clinical Research Process.
Our calling and vision is to develop strategies, and to create a patient education platform.
We’re also working to build a clearinghouse and connection portal for patients, doctors, researchers, scientists, govt agencies and clinical research organizations to connect to create and implement patient-driven/patient-centered clinical trials.

Our work will ensure patients become the nucleus of clinical research.

What has been your biggest challenge as an entrepreneur and how are you working to overcome it?
Funding.

Patients For Clinical Research opened as a corporation on recommendation from our attorney, accountant, advisors and the IRS. The backlog in the IRS Charity Department for 501(c)3 Public Charities has an approval decision time of 9+months with an expedition consideration request. We are in the process of becoming a B Corporation or social conscious corporation and applying for 501(C)3 status.

That makes PFCR unavailable for most grants.

Give us one word that people might use to describe you.
Persistent

How has Project Eve helped you and/or your business?
Project Eve has helped me with encouraging and educating articles and inspirational Member Stories & Struggles. I look forward to every Tweet.
Thank you for bringing strong businesswomen together.
I also use information I learn on Project Eve in business decisions for PFCR.

Give us an insider tip that relates to your industry or startup story.
Major positive implementations are coming down the Clinical Research pipeline. They will benefit all patients and humanity. Technology builds on technology. Please always protect and respect your health. It can change before you realize. Truly understand your health insurance policy and call your insurer if you have any questions & take nothing for granted. Even if you are insured 60% of all bankruptcies are because of medical bills. If diagnosed with a chronic illness do the research, become a specialist in your illness. Do not assume your physician knows everything about your illness. Be your own patient advocate. Become an EPatient. Go to clinicaltrials.gov & contact me. No one should be sick and feel alone & scared. Never Give Up! Never Give Up No Matter How Sick you are or How Difficult things get. Your life could depend on it as mine did and does. Keep Hope Alive. Reach down deep inside and fight like you never knew you could. Life is a gift and very precious.

Company: Patients For Clinical Research

Website:

Follow my organization on social media here:
ChiariTracy

www.linkedin.com/pub/tracy-zervakis/59/5bb/259
Please submit your startup story to the largest archive of entrepreneurial startup stories in the world so, together, we can motivate women in business to think beyond traditional boundaries, support one another, embrace change and view challenges as opportunities. Whether you are a small business owner, a freelancer, a serial entrepreneur, own an online business, operate a storefront on Main Street, or even moonlight with an amateur blog our 500,000+ community would like to hear your Startup Story! Answer seven short questions to create a blog of your story today!

22 COMMENTS

  1. 529687 88467Im not certain why but this weblog is loading incredibly slow for me. Is anyone else having this concern or is it a issue on my finish? Ill check back later and see if the dilemma nonetheless exists. 445823

  2. 505082 15759Extremely properly written story. It will probably be valuable to anyone who usess it, including yours truly . Keep up the excellent work – canr wait to read far more posts. 196888

  3. 508163 166711Hi. Cool post. Theres an concern together with your web site in firefox, and you might want to check this The browser could be the market chief and a good section of men and women will pass over your excellent writing because of this dilemma. 864407

  4. Thank you a lot for giving everyone remarkably pleasant opportunity to read from this web site. It is often so beneficial and also stuffed with a good time for me personally and my office peers to search your web site nearly thrice every week to see the new things you will have. And of course, I am at all times fulfilled with your perfect principles you give. Selected 4 points in this post are honestly the most efficient I’ve had.

  5. Good day! I could have sworn I’ve been to this site before but after browsing through some of the post I realized it’s new to me. Anyhow, I’m definitely delighted I found it and I’ll be book-marking and checking back frequently!

  6. Thank you for every other informative web site. The place else could I get that type of information written in such a perfect way? I’ve a venture that I’m simply now running on, and I have been at the look out for such info.

  7. 522727 571929Wow that was strange. I just wrote an incredibly long comment but following I clicked submit my comment didnt appear. Grrrr effectively Im not writing all that over once again. Regardless, just wanted to say great weblog! 381359

  8. This design is spectacular! You obviously know how to keep a reader amused. Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Wonderful job. I really enjoyed what you had to say, and more than that, how you presented it. Too cool!

  9. Hi there, I discovered your website by the use of Google even as searching for a similar subject, your site got here up, it appears to be like great. I have bookmarked it in my google bookmarks.

  10. Have you ever thought about publishing an ebook or guest authoring on other sites? I have a blog centered on the same topics you discuss and would love to have you share some stories/information. I know my viewers would value your work. If you’re even remotely interested, feel free to shoot me an email.

  11. Hello there! Quick question that’s totally off topic. Do you know how to make your site mobile friendly? My website looks weird when browsing from my apple iphone. I’m trying to find a template or plugin that might be able to fix this problem. If you have any suggestions, please share. Many thanks!

  12. Hey I am so delighted I found your site, I really found you by error, while I was browsing on Yahoo for something else, Anyways I am here now and would just like to say kudos for a fantastic post and a all round exciting blog (I also love the theme/design), I don’t have time to read through it all at the moment but I have saved it and also added your RSS feeds, so when I have time I will be back to read a lot more, Please do keep up the fantastic work.

LEAVE A REPLY

Please enter your comment!
Please enter your name here